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What does the NTS do?
The Dutch Transplant Foundation (NTS) coordinates the chain of organ donation, tissue donation, and transplantation nationwide. Read more about the role and tasks of the NTS.
Together with hospitals, medical professionals, and other partners, we ensure a well-functioning, high-quality, and future-proof donation and transplantation process. Our goal: everyone who needs an organ or tissue receives it in time.
Complex process
A transplantation starts with a donor and ends with a patient who is helped with an organ or tissue. In between, a process takes place involving many people and organizations. Think of donor hospitals, transplant centers, laboratories, donation, retrieval, and transplant professionals, allocation teams (for a fair distribution of organs and tissues), tissue banks, and transporters on the road and in the air.
The best possible donation and transplant care
This complex process requires good coordination within the chain. That is the work of the Dutch Transplant Foundation: ensuring that, with all involved parties, we have a donation and transplant process that functions well, is effective, and is of high quality. In this way, we work together to provide the best possible donation and transplant care in the Netherlands. We do this with appreciation for donors and attention to their loved ones.
Tasks and roles of the NTS
The NTS performs this coordination of the chain on behalf of the Ministry of Health, Welfare and Sport (VWS), based on the Organ Donation Act, the Safety and Quality of Body Material Act, and other regulations. What does this involve?
Organ Center: statutory tasks
The NTS has various statutory tasks to ensure that the donation and transplantation of organs and tissues proceed properly. This follows from the Organ Donation Act. To carry out these tasks, the NTS has an Organ Center that is available 24/7 for doctors.
Organ donation: statutory tasks
- Organ donation:consulting the Donor Register, reporting an organ donor, and managing the Quality and Safety protocol.
- Organ retrieval:organizing transport for retrieval teams and from the donor hospital to transplant centers.
- Allocation of organs:commissioning Eurotransplant for this purpose and maintaining and managing the national allocation policy, including allocation rules, the waiting list, and waiting list criteria. This is done in consultation with the Organ Advisory Committees of the Dutch Transplantation Society. European agreements are also included in this.
- Organ monitoring:delivering and interpreting data from the organ chain and handling and reporting incidents.
Collaborating in the organ chain
Tissue donation: statutory tasks
- Tissue donation: consulting the Donor Register, donor screening and donor acceptance, and drafting and managing medical guidelines for donor screening.
- Tissue retrieval: commissioning the start of a tissue retrieval procedure and coordinating transport, which is handled via WUON (Tissue Retrieval Organization Netherlands).
- Allocation of corneas and heart valves: management of allocation rules, the waiting list, and waiting list criteria, in consultation with the Cornea Committee. European agreements are also incorporated into this.
- Tissue monitoring: delivering and interpreting data from the tissue chain, handling and reporting incidents.
Collaborating in the tissue chain
Living donation: statutory tasks
- Allocation of kidneys from living donors: Executing and managing the cross-over program. Kidney donors decide for themselves who receives their kidney; there is often a family relationship. However, sometimes there is no match between the donor and the intended recipient. There are also donors who have no preference for a specific recipient (altruistic donors). To achieve a good match with a recipient and allocate the kidney fairly in these situations, the Organ Center manages a cross-over program.
- Monitoring:delivering and interpreting data from living donation.
Advising VWS on themes in donation and transplant care
Commissioned by the Ministry of Health, Welfare and Sport (VWS), the NTS works with the field on the preparation, implementation, and evaluation of policy.
In this context, the NTS, for example, puts topics on the agenda that are relevant within the donation and transplant care chain and actively contributes to finding solutions.
- How do we deal with the shortage of donor organs and ensure fair distribution?
- How do we deal with social developments such as organ donation after euthanasia?
- How can we make innovative developments widely available?
- How do we work together to ensure careful allocation of capacity and budget as the supply of donors grows?
- How do we arrive at good quality indicators?
These are questions for which the NTS, together with the Dutch Transplantation Society (NTV) and other partners and professionals, develops policy and advises the Ministry of VWS.
Chain collaboration in donation and transplantation
As a chain coordinator, the NTS also supports the Ministry of VWS, hospitals, transplant centers, and other collaborative partners in the operational chain of donation and transplant care. Efficiency and future-proofing are important principles in this regard.
- The NTS advises the ministry on the implementation of the organ and tissue chain and monitors its execution. This is done, among other things, based on nationally collected data in the donation and transplant process. Think of identifying trends, management information, and reporting and handling incidents.
- The NTS also often plays a role in the evaluation of, for example, new functions and the effectiveness of implemented innovations.
- We help in drafting frameworks and guidelines and support parties in making agreements.
- The NTS also initiates and supervises activities and projects to optimize the quality, safety, and effectiveness of donation.
In doing so, we take European agreements into account: the NTS has been designated by the Ministry of VWS as the competent authority to reach recommendations and guidelines regarding organ and tissue donation and transplantation in European consultations.
Supporting advisory committees
In the transplant field, the secretaries support the national organ and tissue advisory committees of the NTV. The NTS makes follow-up data after transplantation transparent in dashboards per organ and tissue.
Contributing to innovations
The NTS also actively contributes to innovative developments such as aNRP (Abdominal Normothermic Regional Perfusion), PROMs (Patient Reported Outcome Measures) and the matching program Crossover+.
Supporting professionals
We also support professionals in their work in other ways. For example, we provide support resources: from IT support to visual aids. The NTS also offers a wide range of training: from e-learnings to workshops and webinars.
Collecting data
Together with the field, the NTS collects extensive data on the donation and transplantation process. For instance, the outcomes of transplantation for patients and living donors of organs and corneas are collected in the Dutch Organ Transplantation Registry (NOTR), which is managed by the NTS.
On our data platform, we collect even more, such as data on organ quality and information about patients on the waiting list. This gives the NTS a unique dataset.
We make this data accessible to professionals via dashboards, and we identify and interpret trends in the data. We also provide data needed for research and for making decisions about effective care. And we use data to develop predictive models.
Research and innovation
The NTS collaborates on promising (inter)national research. In doing so, we aim to organize care processes in a high-quality and efficient manner and to structure them in a future-proof way.
Public communication
The NTS also contributes to the conversation in society and at the kitchen table regarding organ and tissue donation through public communication. It is important that the Dutch public understands what organ and tissue donation entails and recognizes its value. This allows everyone to make an informed choice in the Donor Register.
We work on this daily through our public website, social media channels, campaigns, and other communication channels. The NTS also encourages people to know the choices of their loved ones to avoid surprises during an emotional moment.
Financing
In addition, the NTS operates a separate financing system for the organ chain (clearing house), as donation and transplantation are not 'ordinary' patient care. In this capacity, the NTS ensures that costs incurred within the organ chain that cannot be reimbursed through regular healthcare financing are covered via the so-called organ budget. This organ budget is financed by health insurers.
On behalf of the Ministry of Health, Welfare and Sport (VWS), the NTS also administers the Subsidy Scheme for Living Donation. Living donors can be reimbursed for costs incurred or lost income related to a donation. The NTS assesses the applications, ensures donors are aware of the subsidy scheme, and handles the payment of the awarded amounts.
Legal frameworks
Clear frameworks and legislation are necessary for the smooth operation of donation and transplantation. The NTS provides advice regarding changes in regulations and laws to ensure they align as closely as possible with practice. This provides clarity for all parties involved in the chain.
The NTS works with many sensitive personal data of donors and patients. Safeguarding the privacy of all these individuals is our top priority. We therefore ensure that all NTS employees, as well as chain partners, work according to strict guidelines and the General Data Protection Regulation (GDPR).
External safeguards
The NTS has a unique and important role within the field of donation and transplantation. To ensure that tasks and responsibilities are carried out according to guidelines and laws, various external safeguards have been incorporated for oversight.
The NTS is certified for both ISO9001 and NEN7510. Additionally, the Health and Youth Care Inspectorate conducts an annual audit on the quality of the NTS's operations. Furthermore, the NTS as a whole is evaluated once every five years by an external research agency commissioned by the Ministry of Health, Welfare and Sport (VWS).